Elijah's Baby Bucket List!

Elijah's Baby Bucket List is a social media movement raising awareness about lissencephaly while helping 6-year-old Elijah live life to the fullest.


Elijah is quite the celebrity, not just among his nine older siblings!

The 6-year-old was born with a rare, terminal genetic condition called lissencephaly.

They said he would not live to be two!

The devastating diagnosis led his single mother and siblings to create a bucket list to fill Elijah's lifetime with as much happiness and adventure as possible.


"Elijah's Baby Bucket List" is now a popular social media movement dedicated to raising awareness about lissencephaly. It also provides opportunities for Elijah to live his life to the fullest while spreading joy and making new friends and memories.  

Elijah's story has appeared on TV, radio, print, and online. He also has over half a million followers from around the globe on platforms including Facebook, Instagram, YouTube, and TikTok. His followers read about his latest experiences and enjoy videos of his infectious laughter and smile.

"He's always happy, always laughing. It's hard to stay sad when he's around," said his mother, Amy Tarpein. "He is unconditional love and the embodiment of pure joy."


Join our adventures!

Despite the odds, Elijah never gives up, reminding us that some things cannot be fixed – they can only be carried. Life has its challenges, and no matter how well-intentioned we may be, some things are out of our control. Thankfully, when we need it most, God sends someone to help us through. Although I cannot explain why things happen the way they do, I know that we are braver when we face them together. While this was not what I initially planned, I feel blessed to be Elijah's mother and give him the best life filled with God's love. Thank you for your support in making this possible.