Planning an accessible vacation can open up the world to more travelers of all abilities.

Traveling as a family is never just about the miles you cover. It’s about the memories you make. The moments that surprise you. It’s about the way the world opens up when you step into it together. But when you’re traveling with a child who has medical, mobility, or sensory needs, planning a vacation becomes something deeper. It becomes an act of love, advocacy, and courage.

I learned this the day Elijah was diagnosed with lissencephaly. Doctors told us to prepare for limitations. Instead, we prepared a promise: We will show you the world. Not because it would be easy. It was because he deserved to experience it. He deserved to experience all of it in the ways his body and spirit allowed.

Over the years, we’ve traveled highways, airports, museums, beaches, and backroads. We did this with wheelchairs, medical equipment, siblings, and a whole lot of hope. We’ve learned what works, what doesn’t, and what families like ours need to know before setting out.

This guide is for you. It is meant for parents, caregivers, grandparents, and families. You want to explore but aren’t sure where to start. You deserve a vacation that feels possible, joyful, and fully accessible.

Let’s start planning an accessible vacation together.

1. Start With Your Family’s Needs, Not the Destination

Most families pick a destination first. Families like ours pick accessibility first.

Ask yourself:

• What mobility or medical needs must be accommodated?
• What sensory considerations matter most?
• What equipment must travel with you?
• What does comfort look like for your child?

For us, accessibility isn’t a feature; it’s the foundation. Elijah’s wheelchair, feeding needs, and medical equipment shape every decision. When you start with your family’s needs, you build a trip that supports everyone instead of stretching you thin.

Pro tip: Create a “non‑negotiables” list. Ours includes:

• Step‑free access
• Accessible tub
• Space for medical equipment
• Nearby hospitals
• Quiet spaces for sensory breaks

Your list becomes your compass when you are planning an accessible vacation.

2. Research Like a Detective (Because Accessibility Info Is Often Wrong)

Here’s the truth: accessibility information online is often incomplete, outdated, or flat‑out wrong. We’ve arrived at “accessible” hotels with stairs at the entrance. We’ve visited “wheelchair‑friendly” attractions that require two flights of stairs and have no accessible restrooms.

So now we research as if our trip depends on it, because it does.

You can use a site like Wheel The World that verifies accessibility.

Call the hotel directly. Ask specific questions:

• “Is the roll‑in shower truly roll‑in?”
• “Are there steps anywhere between the entrance and the room?”
• “How wide are the doorways?”
• “Is the bed height compatible with transfers?”

Ask attractions:

• “Is the entire route accessible, or just the entrance?”
• “Are companion passes available?”
• “Is there a quiet room or sensory space?”

Look for lived‑experience reviews.

Families like ours are the most reliable source of truth. That’s why Elijah’s Baby Bucket List exists: to fill the gaps the industry still leaves behind.

3. Build a Medical & Equipment Plan

Traveling with medical needs doesn’t make you less adventurous; it makes you more prepared.

Create a medical travel folder that includes:

• Medication lists
• Emergency plans
• Doctor’s letters
• Insurance information
• Copies of prescriptions
• A list of nearby hospitals or urgent care centers

For equipment:

• Charge everything the night before
• Pack backups for anything that can break
• Bring extension cords and power strips
• Use a dedicated “medical bag” that never leaves your side. Ours is bright orange!
• Bring a small tool bag, it should have Velcro in there

We’ve had feeding pumps fail, wheelchairs damaged, and medical supplies lost in transit. Preparation doesn’t eliminate stress, but it gives you a safety net.

4. Choose Transportation That Works for Your Family

Flying:

Air travel with a wheelchair or medical equipment can be intimidating. We’ve heard of beautiful experiences and heartbreaking ones. The key is preparation and advocacy.

We use this comprehensive Flight Ready Travel Kit from Phoenyx Travels. Perfect for disabled, chronically ill, neurodivergent, and sensory-sensitive travelers. It is ideal for those who want a calmer, more supported flying experience without guesswork. This kit prevents scrambling or starting from scratch every trip.

• Request wheelchair assistance early
• Pre‑board if possible
• Take photos of your wheelchair before gate‑checking
• Attach clear instructions for handling
• Know your rights under the Air Carrier Access Act
• Request that your wheelchair be stored in the wheelchair space in the cabin

Road Trips:

Road trips give you control over timing, breaks, equipment, and comfort. That’s why Route 66 became such a powerful journey for us. We could move at Elijah’s pace, stop when he needed, and experience the world without rushing. You can find our book on Route 66 here.

Trains & Accessible Transit:

Many families overlook trains, but they can be incredibly accessible and low‑stress.

5. Build a Flexible Itinerary (Because Life Happens)

Families with medical or mobility needs know that plans can shift in an instant. That’s not failure, that’s life.

Plan one “anchor activity” per day.

Not five. Not three. One.

Everything else is optional.

Leave room for:

• Rest
• Medical care
• Sensory breaks
• Weather changes
• Unexpected joys
• Car trouble

Some of our best memories weren’t on the itinerary at all. They were the quiet moments and the detours. We found these places simply because we slowed down.

6. Pack With Purpose (And a Little Bit of Humor)

Packing for a medically complex child is basically a sport. You become a logistics expert, a Tetris champion. You are also a magician who somehow fits an entire medical supply closet into one suitcase.

Our packing categories:

• Medical
• Mobility
• Comfort
• Clothing
• Snacks
• Entertainment
• “Just in case” items

And yes, the “just in case” bag always gets used.

7. Advocate Without Apology

You are not asking for special treatment. You are asking for equal access.

If something isn’t accessible, speak up. If someone dismisses your concerns, ask for someone who won’t. A policy doesn’t make sense, challenge it.

Every time we advocate, we make the world a little more accessible for the families who come after us. It makes planning an accessible vacation a little easier.

8. Celebrate the Wins, Big and Small

Traveling with a medically complex child is brave. It’s beautiful. It’s exhausting. It IS worth it.

Celebrate:

• The moment you load the car
• The first accessible trail you find
• The hotel room that actually matches the photos
• The smiles, the laughter, the memories
• The fact that you did it together

Every trip is a victory. Every mile is a love story.

Final Thoughts: You Deserve This

Families like ours are often told what we can’t do. But travel has taught us something different: We are capable of more than the world expects of us.

A fully accessible family vacation isn’t just possible, it’s powerful. It strengthens your family, expands your child’s world, and reminds you that joy belongs to you, too.

And if you ever need guidance, encouragement, or lived‑experience insight, our little corner of the internet is here for you. Always.

• Essential Tips for Accessible Family Travel
• Embarking on an Epic Adventure: Essential Tips for Traveling with Medical Needs
• About Elijah’s Baby Bucket List
• Exploring the Accessibility at St. Louis Union Station: A Family-Friendly Adventure
• The Caregiving Mom’s Refresh Retreat