Traveling with a Child Who Is Medically Complex
Finding Accurate Accessibility Information
I volunteered to cover the #7 barrier to special needs family travel: accurate accessibility information. As a single mom to ten children, including one with a rare disease, I have learned quite a bit from our journeys! Below, I share accessible travel planning insights that can make travel more accessible for all of us!
Being a single mother to ten children is no easy feat, but when one of your little ones is terminally ill, the challenges of everyday life can become overwhelmingly complex. Despite these challenges, as a mother, my priority has always been to create lasting memories with all my children, ensuring that they experience joy and adventure regardless of our circumstances. Traveling with a terminally ill child presents its own set of obstacles, but with careful planning and the right resources, it is indeed possible to embark on memorable journeys that cater to the needs of each family member.
The Need for Accurate Accessibility Information
For families with disabled children, finding accurate accessibility information about destinations is crucial to ensuring a smooth and enjoyable travel experience. Planning ahead is key, and I have learned through my own experiences with Elijah’s Baby Bucket List that research is fundamental in making informed decisions about where to go and how to get there. Here are some valuable tips for families traveling with a child with a disability on how to find accurate accessibility information about destinations.
Tips for Finding Accessibility Information
Online Resources:
Utilize online resources dedicated to providing information on accessible travel destinations. Apps like
Accessiblego and Wheelmap offer detailed accessibility information for a wide range of locations, making it easier to plan your trip with confidence.
Local Organizations:
Reach out to local disability organizations or advocacy groups at your destination. These organizations can often provide up-to-date information on accessible facilities, services, and activities in the area, ensuring that you have a reliable source of information before you travel.
Review Websites and Forums:
Online platforms where individuals share their experiences about traveling with disabilities can be invaluable. Reading firsthand accounts from other families can provide essential insights into the accessibility of different destinations and help you make informed decisions. One of our favorite travel bloggers is Curb Free with Cory Lee. We recently met up in Panama City Beach FL and enjoyed some accessible activities such as a sunset stroll along the pier and fun with friends in Gran Maze. You can find more at Visit Panama City Beach.
Travel Agents:
Consider working with a travel agent who specializes in accessible travel. These professionals have the expertise to recommend destinations that cater to the specific needs of disabled travelers and can help you plan a trip tailored to your family’s requirements. We love the people at Wheel the World!
Accommodations:
When booking accommodations, make sure to directly contact hotels, resorts, or rental properties to inquire about their accessibility features. Ask detailed questions about room layouts, bathroom facilities, and any additional services they offer for disabled guests. Typically, a general manager can provide assistance.
Transportation Options:
Research the transportation options available at your destination. Look into whether public transportation, taxis, or private car services are equipped to accommodate individuals with disabilities and inquire about any special assistance that may be available.
Detailed Itinerary:
Plan your itinerary in advance and include information about accessible attractions, restaurants, restrooms, and medical facilities along the way. Having a well-thought-out plan can help reduce stress and ensure that you have a smooth travel experience.
Hospital Locations:
When traveling with a terminally ill child, it is crucial to have access to major hospitals along the way. Familiarize yourself with the locations of these hospitals before you embark on your journey. Being aware of where the nearest medical facilities are located can provide you with a sense of security and preparedness in case of any emergencies.
Important medical documents :
Additionally, it is advisable to carry important medical documents and contact information with you at all times. Prioritize the well-being and comfort of your child by ensuring that you are well-equipped and informed throughout your travels. We bring a medical sheet that includes diagnoses, normal vital signs, medications, allergies, and contact information for our core medical teams. We have a travel Template available so you have all medical information ready and on hand. It can also be helpful to have a list of emergency contacts.
Tourism Office:
In addition to researching online, it can also be helpful to reach out directly to the destination’s tourist office or customer service department. They may be able to provide you with detailed information about accessibility features, as well as answer any specific questions you may have about traveling with a disabled child. Don’t hesitate to ask about things like wheelchair rentals, accessible transportation options, and any special accommodations that may be available. The friendly staff at Memphis Travel are extremely helpful!
Be thorough:
When researching accessibility information, it’s important to be thorough and ask specific questions about your child’s needs. For example, if your child uses a wheelchair, make sure to ask about the width of doorways, the presence of ramps, and the availability of accessible bathrooms. If your child has sensory sensitivities, ask about noise levels, crowds, and any quiet spaces that may be available. Places like the
St Louis Aquarium have special accommodations like a sign language interpreter.
Be Flexible:
Despite your best efforts to gather accurate accessibility information, unexpected challenges may still arise during your trip. Stay flexible and be prepared to adapt your plans as needed to ensure that everyone in the family has a positive experience.
Traveling with a Positive Attitude
Remember, every journey, no matter how challenging, is an opportunity to bond, grow, and cherish the moments spent together as a family. Traveling with a child who has disabilities can present unique challenges, but with careful planning and research, it is possible to ensure a smooth and enjoyable trip for the whole family. With the right preparation and a positive attitude, you can create lasting memories and unforgettable experiences for your family.
Be flexible and adaptable. Despite your best efforts to gather accurate accessibility information, unexpected challenges may still arise during your trip. Stay flexible and be prepared to adapt your plans as needed to ensure that everyone in the family has a positive experience.
Traveling with a terminally ill child presents its own set of emotional and logistical challenges, but with careful preparation and access to accurate accessibility information, families can embark on
meaningful journeys that create lasting memories. By taking the time to research destinations, connect with local resources, and plan ahead, families can enjoy enriching travel experiences that cater to the unique needs of every family member.
The Reward of Traveling
Traveling with a child who has special needs, such as disabilities or terminal illnesses, requires accurate accessibility information to ensure a smooth and enjoyable experience. Planning ahead is crucial, and several strategies can help families find the information they need. Utilizing online resources like Accessiblego and Wheelmap, reaching out to local disability organizations, reading reviews and forums, and consulting with specialized travel agents are effective ways to gather accessibility insights. When booking accommodations, contacting hotels directly to inquire about specific accessibility features is important. Additionally, researching transportation options and planning a detailed itinerary with accessible attractions can reduce stress. It’s also essential to know the locations of major hospitals and carry important medical documents. Flexibility and a positive attitude are key, as unexpected challenges may arise. Ultimately, with careful preparation, families can embark on rewarding travel experiences that create lasting memories.
